Optic Neuritis Patient Stories

optic neuritis patient stories

The exact reason for optic neuritis is unknown. Nevertheless, optic neuritis is believed to establish when the immune system erroneously targets the drug covering your optic nerve (myelin), resulting in inflammation and damage to the myelin.

Optic Neuritis Causes

Normally, the myelin helps electrical impulses travel quickly from the eye to the brain, where they’re converted into visual details. Optic neuritis interrupts this process, impacting vision.

The following autoimmune conditions typically are connected with optic neuritis:

Several sclerosis. Numerous sclerosis is an illness where your autoimmune system assaults the myelin sheath covering nerve fibers in your brain and spine. In individuals with optic neuritis, the threat of developing several sclerosis following one episode of optic neuritis has to do with 50 percent over a lifetime.

Your risk of developing multiple sclerosis after optical neuritis enhances further if an MRI scan programs lesions on your brain.

Neuromyelitis optica. In this condition, swelling takes place in the optic nerve and spine. Neuromyelitis optica has resemblances to multiple sclerosis, however neuromyelitis optica does not trigger damage to the nerves in the brain as typically as multiple sclerosis does. Optic neuritis developing from neuromyelitis optica tends to be more severe than optic neuritis related to multiple sclerosis.

Other autoimmune conditions, such as sarcoidosis and systemic lupus erythematosus, have likewise been related to optic neuritis.

Other aspects that have been connected to the advancement of optic neuritis consist of:

  • Infections. Bacterial infections, including Lyme disease, cat-scratch fever and syphilis, or viruses such as measles, mumps and herpes can cause optic neuritis.
  • Drugs. Some drugs have been related to the advancement of optic neuritis. One of these drugs is ethambutol (Myambutol), which is utilized to treat tuberculosis.

8 Optic Neuritis Patient Stories

Story # 1.

I had brain surgery in 2012. My neuro eye doctor couldn”t find out why my optic nerves were inflamed; since my head had actually been cut open. In addition to blurred vision I was having bad head pressure. Top and back of head hurt to touch. So he sent me to the emergency room where they did an MRI and MRV. I also had a back tap due to the fact that my pressure was badly high. Following week the neuro optometrist put me on acetazolamide and I was still having head pressure however no blurred vision. I went to see a neuro oncologist and he upped the dosage to 2 tablets 3 times a day. I”ve had bare very little head pressure but he said optic nerves are still swollen. So I’m hoping the medications remain to work and the optic nerves return to typical.

Story # 2.

I discovered pain in my left eye and back of my head about one week back, and took Aleve, thinking it would disappear. Regrettably, it became worse when my field of vision ended up being minimal about two days earlier, out of no place. I was told to immediately go to an eye professional, who carried out tests and an MRI and detected the concern as optic neuritis. I have actually now been in the health center for 2 days, receiving IV treatment of methylprednisolone and I plan to be here another 2 days. A little white matter was discovered throughout the MRI, but I am hoping that it does not end up being MS (multiple sclerosis); only time and more blood work will inform.

Story # 3.

I am at my wits’ end as twice now I have actually been hospitalized. Every test offered has been done, consisting of lumbar puncture, intravenous cortisone, oral prednisone, 4 MRIs, and absolutely nothing appears to work. I wonder if there is the probability that the consistent dull pains will disappear. It’s truly tough to deal with. Can not believe I might have to live with this for years. It has actually been 3 months with optic neuritis now and no enhancement.

Story # 4.

My papa lost his vision in both eyes due to optic neuritis. Doctor informed there is no treatment for it.

Story # 5.

I made use of baby oil to remove my makeup and it went into my eye. Days later on I experienced pain when I moved my right eye. 3 days later on I lost about 10 % vision and went to the hospital. I was detected with optic neuritis in April 13 after numerous blood test and an MRI. I was treated with IV steroids for three days with appointments every fortnight for 6 weeks and then discharged. 5 Months later I started feeling pressure when I flex down and have pain in my right temple.

Story # 6.

In 2007 I stood up and the vision in my right eye went black for a few seconds and I disregarded it. I always had headaches/migraines. It had not been up until a week later on that I understood I could not see from my right eye, just light. I went to the doctor and was confessed to the health center for a week with a severe case of optic neuritis. The IV medicines made me toss up and caused my blood pressure to sky rocket. The cure was even worse than the illness. I had zero eye pain. My headaches were a daily thing so I truly didn’t understand anything was so incorrect. It’s been 6 and a half years because that occurred.

Story # 7.

I am 40 years of ages and was detected with optic neuritis in August 2012. It took a week, 3 ER visits, and a diagnosis from an ophthalmologist prior to I was lastly offered IV steroids followed by 60 mg daily for a month. Just under 3 weeks of being completely off prednisone, I had another episode. This one is not as uncomfortable, there is no vomiting this time. I am told that the degree of pain is rare. I begin my 3 day course of IV treatment tomorrow. I believe mine is brought on by a household history of unusual autoimmune diseases. The true blessing from all this is while investigating my eye, doctors discovered a brain aneurysm. My medical professionals presently feel the aneurysm was discovered in enough time to avoid a rupture. However, I would not wish the pain or vision loss induced by optic neuritis on my worst enemy.

Story # 8.

Have had optic neuritis for almost a year now, went through all the tests for MS, brain scans, spine tap etc, all negative but eye is still the very same with about a 90 % loss of vision. This is regretfully my good eye, the other one is a lazy eye so have had a lot of problems adjusting. They state ensure it doesn’t persist – hard to understand the best ways to stop it as it appeared from no place.



The Author

Reyus Mammadli

Healthy lifestyle advisor. Bachelor Degree of Medical Equipment and Electronics.
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